Pauline O'Connor

Aug 15

🆕 Tips for Managing Prescriptions and Travelling with #PKU Earlier this summer I had a great conversation with Tom and Jasmine for this new podcast by the NSPKU. https://www.youtube.com/watch?v=K8fhJ3g3Mes

Jun 28

One Man. 10 Days. An epic challenge. PKU dad Ian Spriggs is running from Bristol to Newcastle for NSPKU

Jun 10

Just released my new PKU books. An ABC reader and a colouring book 👏 Designed especially for children with Phenylketonuria. 👏 Full of foods which are considered protein-free for PKU in the UK, 👏 checked by PKU clinicians.

May 27

Catch up on this great discussion about creativity and rare disease. Rare Creatives’ Lives: Storytellers on Rare Disease In the Arts.